Thursday, August 08, 2013

Life With Dysautonomia...

We went to Atlantic City today.  Normally this is followed by we went to_____________casino and did a little gambling.  (We used to bring $20.00 and go Casino hopping)  Had a great dinner at the buffet and walked the boardwalk and on the beach hand in hand.  We did it without thinking anything of it, but this trip was just a reminder of the reality of my life.  Today it went like this.... Got a shower last night because I just don't have enough spoons (energy) to do both in one day. Because of my insomnia I didn't fall asleep till 5:00 a.m.   I didn't wake up till 1:00 p.m.  I woke up with my usual nausea, a bladder infection I can't seem to get rid of, my normal bloating and abdominal pain and my super human ability to walk up a set of stairs.  I used to love car rides, most of the time usually knocked out after a half hour.   This trip was vastly different.  The bumps made my nausea worse and I will let it go there because I know you don't want to know the details.  Dinner was not even in the picture as I barely eat on a good day.  I couldn't leave the car because the heat just does not like my body.  If I did, it wouldn't make a difference because walking from the car to the boardwalk would have m gasping for breath.  On the ride home I had a lot of thoughts running through my head and I just mourned the life I used to live.  I hope anyone that reads this, takes a moment to appreciate the things you can do and take nothing for granted because things may change in the blink of the eye.

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